Disconnected Health Data 'Beyond Absurd,' Says Innovator and Patient

Scott Mace, for HealthLeaders Media , August 6, 2013

McCollister-Slipp is not content to merely advocate for these changes, or even merely to develop innovative new analytics tools. She also epitomizes the movement of "quantified self" patients who measure every possible health data point they can to help manage their diseases.

McCollister-Slipp has four medical devices on her around the clock. Two are literally attached to her body. One is a continuous glucose monitor, and another is an insulin pump. A third is a SymlinPen, a biologic-in-a-pen she uses to control glucose at mealtime. The last one is a second glucose monitor, which provides auxiliary readings.

Still, McCollister-Slipp cannot see relevant patterns in the data from the combined data outputs of all these devices – because they are not available for analysis outside of each one's closed data system.

"You still have to hand-write most of the stuff," she says. "It's beyond absurd."

McCollister-Slipp also has chronic kidney disease, and must monitor her blood pressure with a wireless blood pressure monitor. She also has a body analysis scale which tells her about her bone mass as a portion of her body, as well as her level of hydration. Finally, she has a fitness tracker device, to keep tabs on her activity level as she hits the gym or heads out for a walk.

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4 comments on "Disconnected Health Data 'Beyond Absurd,' Says Innovator and Patient"

Manny Hernandez @DiabetesHF (8/13/2013 at 10:17 PM)
Connected health is important to every patient, but for people with diabetes, whose lives are filled with numbers all over the place (blood glucose data, insulin pump data, A1c data, etc. etc.) it is of the essence! I commend Anna for taking on this much needed issue and advocating on behalf of people touched by diabetes and all patients at large.

Harvey (8/8/2013 at 8:21 AM)
Same old same old where the belief is that the commercial sector will do the right thing. As long as there is tax payers dollars funding EMR's there has to be a demand placed on the manufactures for cheap and easy interoperability. With the cost providers are asked to pay for conductivity with ancillary devices (when in the few situations it's even possible)in many cases it becomes cost prohibitive. AS an example it cost from some EMR vendors between $350-$500 just to connect a scale. The dream of a connected medical world is decades away unless our politicians realize that getting elected is not their primary job but doing the right thing is

Carol Miller (8/7/2013 at 9:59 PM)
Great article, and thank you Anna for taking on such a complex and important cause to so many who live daily with and manage chronic diseases.




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