Disconnected Health Data 'Beyond Absurd,' Says Innovator and Patient

Scott Mace, for HealthLeaders Media , August 6, 2013

Health data from medical devices and electronic health records remains frustratingly siloed beyond the reach of individuals and analytical tools. Anna McCollister-Slipp, co-founder of a real-time analytics platform, is working to change that.

Anna McCollister-Slipp

Anna McCollister-Slipp

Patients want it. Innovators want it. Providers want it. What is it? Data, liberated from electronic health records, and medical devices. Not to mention millions of records and documents still trapped in paper form.

Getting this data into a form where it can be browsed, analyzed, and applied to a thousand new theories about disease and treatment is no small feat. Doing it while the healthcare system as we know it is being reinvented is even more challenging.

In the past, I've written about the e-patient movement, healthcare hackers, and how innovation happens. I've talked with some of the leading innovators and the pioneers working on health information exchanges.

When talented individuals bring their passion to more than one of these callings, they can really make an impact. One such individual is Anna McCollister-Slipp. First, she's an innovator. McCollister-Slipp is co-founder of Galileo Analytics, whose Galileo Cosmos visual data exploration and real-time analytics platform was used in a March 2013 demonstration by the American Society of Clinical Oncology (ASCO) to visually explore complex data in ASCO's CancerLinQ prototype.

But McCollister-Slipp has a special stake in this work. She's also a type 1 diabetes patient, with complications.

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Comments are moderated. Please be patient.

4 comments on "Disconnected Health Data 'Beyond Absurd,' Says Innovator and Patient"

Manny Hernandez @DiabetesHF (8/13/2013 at 10:17 PM)
Connected health is important to every patient, but for people with diabetes, whose lives are filled with numbers all over the place (blood glucose data, insulin pump data, A1c data, etc. etc.) it is of the essence! I commend Anna for taking on this much needed issue and advocating on behalf of people touched by diabetes and all patients at large.

Harvey (8/8/2013 at 8:21 AM)
Same old same old where the belief is that the commercial sector will do the right thing. As long as there is tax payers dollars funding EMR's there has to be a demand placed on the manufactures for cheap and easy interoperability. With the cost providers are asked to pay for conductivity with ancillary devices (when in the few situations it's even possible)in many cases it becomes cost prohibitive. AS an example it cost from some EMR vendors between $350-$500 just to connect a scale. The dream of a connected medical world is decades away unless our politicians realize that getting elected is not their primary job but doing the right thing is

Carol Miller (8/7/2013 at 9:59 PM)
Great article, and thank you Anna for taking on such a complex and important cause to so many who live daily with and manage chronic diseases.




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