In desperation, Haley's mother, Christine Lairmore, turned to the Internet, and found a blog post describing a child who looked just like Haley, who at that point was down to 76 pounds. In that blog post was posted Phil Fischer's 4-1/2-minute video about POTS, four years after it was shot. Lairmore found Fischer's information and scheduled an appointment for treatment.
Social media turned out to be a resource that's scalable, requires little labor, and still has value to patients four years after being produced, Timimi says. Mayo filmed Lairmore telling her story, again using a simple Cisco flip camera, and the footage this time ended up being used by ABC News Online.
"I think we have a moral obligation to do this," Timimi says. In an age of too much information, less time for direct patient care and patients spending more time than ever online, providers can use social media to shape the conversation.
So grab a video camera, find some engaged e-patients at your facility, and jump into the Twitterverse and the blogosphere. Even if you're not Mayo Clinic, you never know where it might lead.